So, to any philosophy student interested in some real-world experience in existentialism, may I suggest the emergency room of your local hospital. Forget the cigarettes, black berets and blacker coffee. Instead, if you want to confront all those big “why” questions and stare futility right in the face, find a way to be a fly on the wall in the ER. For added impact – the “yeah, but what does it mean for me?” effect – spend that time in the treatment cubicle of an 89-year-old who happens to be responsible for half of your own DNA.
You frequent readers may have guessed it from the lead-in – after a year of swearing he’d never be back there, Dad ended up in the ER last night, the result of a building level of confusion that began to alarm me through the course of the late afternoon and evening. An hour into his 5 p.m. scotch, the glass remained three-quarter’s full in front of him. He seemed less than enthusiastic about our planned dinner out at one of the local clamshacks, and once we arrived and sat ourselves down, he simply couldn’t engage with the paper menu in front of him. He tried to tell me of some of the conversation that had gone on at his Senior Center coffee group that afternoon, but I couldn’t make any sense of the random sentence fragments he was attempting to string together. At that point, I decided it was best for us to get back home. Walking him from the car to the front door, I realized the wobbly balance issues that had been slowly creeping up over the last couple months were suddenly much worse. It was like he had lost 75% of the strength in his legs – he took my arm and as I held onto him I could feel he was really warm.
When I reached the on-call doctor, he suggested monitoring Dad overnight and bringing him into the walk-in clinic first thing in the morning – but if his temperature hit 101, get him to the ER. Two hours later, I found Dad sitting on the edge of his bed unable to transition from sitting to laying down. I did a quick temp check – 100.8 – and I made the call to what we fondly refer to as Dad’s Big Red Taxi, which came and took away my old man.
And so, there I was, again, packing spare clothes for him and laptop, book, health-care proxy paperwork, etc., for me. Surprising how quickly routines can reestablish themselves. And, a half-hour later, there I was, at 11 p.m., attempting to appear awake and upbeat, supportive yet persistent in conversations with nurses and aides. And, yet, underneath it all, I felt, again, like Scrooge seeing the ghost of old age yet-to-come.
You see, one of the hardest things for me to deal with emotionally in this whole process is the fear that, in my father, I’m looking my future in the face. Spending as much time with him as I do – seeing the right arm barely able to lift a half-gallon milk jug (I’ve given up buying gallons because they’re just too heavy for him), the effort required to get out of the car, his inability to understand what each of his pills does or that he, in fact, has anything wrong with himself requiring the medications – I can’t help but wonder/fear what that portion of my journey will be like for me.
Sure, there are many other challenges in caregiving. The cleaning up – of bathroom floors, bed pads, spilled coffee, the half-ear’s worth of corn kernels that ends up at his feet whenever we have it on the cob – the following up with doctors and specialists and pharmacists, the desire to just give up and take a vacation where three solid nights of sleep might actually run consecutively. And, of course, there’s always the other big self-oriented worry: who will play my role when I’m 89? But the concern that really tightens my chest when I look at my father is, is he – his face, his body, his illnesses, his life – a mirror looking back at me from 38 years in the future?
Maybe it’s a middle-age crisis, but, at almost 52, the 38-year age difference between Dad and me just doesn’t seem all that substantial anymore. And I find the possibility that he could just be me, aged Hollywood-style, simply terrifying. It makes me want to run, get away to that place of simple, oblivious living that is such a luxury to those who aren’t looking mortality in the face every day. In this case, Dad got sent home six hours later with a prescription for antibiotics to treat the a)urinary tract infection, b)bronchitis or c)both that may/may not have been the root cause of the fever and confusion. But I packed him back into the car thinking that, like Sisyphus, this was a rock I’d be pushing up a hill again.
So, you student of Existentialism 101, watching fly-like from that cubicle’s wall, understand that this is what all that Sartre and Camus boils down to – at least to me. An 89-year-old man sleeping fitfully in an emergency room johnny robe, and a 52-year-old son looking on, wondering if the answer to the question “Why?” is, simply, “Because.”












July 22, 2011 at 9:38 am07
Thank you. You said it. And, It’s live and happening now in a tiny area of Vt.
Yes, to fear of this mirroring the future. I’m the 58 yo daughter of an 88 yo mother. We’re up in med/surg having traced our steps back to the ER for a reevaluation after her last ER, 7/14 fall w/head injury. Strange symptoms and intractable pain not much relieved by percoset. ER docs, nurses and PA all believed it simply was opioid side effects. But my suspicions were confirmed. A new ct scan showed a slow brain bleed–scary but miniscule, systolic bp hitting >200 and a delightful UTI (subject of June and May ER visits), and an extended parry between Golitely and enema (now day 8 of constipation). Sir, we could finish each other’s sentences. Top it off w/a sibling who infers that I am to blame for fall, and you have the angst and aging in the Green Mountains. Good luck during your travails. “Because” is the only word that fits.
July 23, 2011 at 9:38 am07
Sadly insightful post. Yes, with you I look at my own mother with horror, wondering about my own future.
Yet, I utterly refuse to follow her path – and perhaps that is her gift to me. I refuse to sit and complain about loneliness when there are dozens of other people just outside my apartment door. I refuse to sit and wait for death, filling my life with only Dr Phil (or the 30-years-hence equivalent) and the weather channel. I refuse to complain, every single day, “I want to die, why aren’t I dead yet?” – then close my ears to any response.
I will remain engaged, curious, kind, interested, learning, reading, growing, helping others. My life will continue to have a purpose, until the final day, whenever that comes.
Yes, I think that truly is her precious gift to me – the ability to visualize a ‘bad’ old age, so that I can know how to age better.
And, I’m trying to be verrrrrrrrrrrrryyyyyyyy nice to my possible future caretakers!
July 26, 2011 at 9:38 pm07
You have put your finger on it, eloquently as always: “I felt, again, like Scrooge seeing the ghost of old age yet-to-come. … And, of course, there’s always the other big self-oriented worry: who will play my role when I’m 89?”
My mother is in independent living, but my husband and I do a lot that keeps that possible. Her downturns require intense care and the juggling among all the old and new specialists you have previously described. I am an only child with no children. I see how depressing is the road she and her elderly neighbors traverse with help from family, much like you describe — and how much more dire the situation is for those without family to help — and I am terrified.
August 2, 2011 at 9:38 am08
I actually studied philosophy in college. My parents are about to turn 60, and I am starting to see signs of the beginning of the end. It is not fun. Thanks for a great post.
August 2, 2011 at 9:38 am08
Wonderful, kiddo. I am a 78-year-old stroke survivor (1995), moderately (but increasingly) disabled. My son is 40. I’m a practicing Tibetan Buddhist, taking extraordinary good care of myself, so as to live a few more years my way in my own home. Alone with my “therapy dog.” But with caring neighbors on all sides. I cannot imagine my son taking care of me in the same way you are taking care of your dad. It is not in either of our natures.
Yet.
August 2, 2011 at 9:38 am08
I am reading your blog for the first time….in tears…..I could be you. You could be me. The only difference is my 98 year old mom receives Medicaid and has 24/7 care provided for her since she cannot walk. So, “all” i have to do is “manage” the care. She just returned from a stay in the hospital with similar symptoms as your dad, high fever, UTI and bronchitis….she licked it…so far….When I am there with her I have the same exact feelings as you and previous posters, being unmarried and childless, wondering will this be my fate too?
To Nancy G: you may “refuse to follow her path”, but in the end, you may not have any choice in the matter, if your end is an inability to walk, even mild dementia, blindness, deafness…..the longer we live, the more likely these things will befall us, even if we continue to have a loving heart, the question at that time remains. “why am I living so long….”. My heart breaks for my mom.
August 2, 2011 at 9:38 am08
Hi Maida. Yes, I understand about the physical limitations and the toll that takes on a body and spirit. There is an insightful book that I reviewed in my blog about the “young-old” and the “old-old”. What I am determined to do, however, is to remain curious and engaged … even if I am blind or disabled, believe me, I will find a way to listen to something interesting, or talk to others and create friendships. I am frustrated and disappointed by my mother’s refusal to participate in life, even the easy things, but her choosing to sit and flick through TV channels instead of venture just steps outside of her door. She has said repeatedly she is just too lazy to care.
I’ve been doing this for years, supporting her, and I am sorry if my words seem harsh, but I feel like it is realistic, in my situation. And yes, I am a stubborn and determined and focused woman, and intend to be so until the last breath – not going out with a whimper, but with a scream or a belly laugh. As Dylan Thomas said,
And you, my father, there on the sad height,
Curse, bless, me now with your fierce tears, I pray.
Do not go gentle into that good night.
Rage, rage against the dying of the light.
My heart also breaks for my mother – but particularly for the terrible loss with a lifetime of her taking an easy road, a path of least resistance; she missed out on a richness of life, a complexity and connections which I now enjoy and am determined to keep on seeking.
I’m so glad that you have such a wonderful connection with your mom. What a blessing for you both.
(Chuck – apologies if I’ve side-tracked the wonderful conversation about this great post! Thanks again for your great blog!)
August 2, 2011 at 9:38 am08
Hi Nancy – no worries. I think you make a great point. My father does get out to his 2x/week poker game, but otherwise he just sits on the sofa with the remote. It’s an existence that would make me crazy. I see him sitting there on my walks through the living room and, like you, my heart breaks a little.
August 6, 2011 at 9:38 am08
Nancy,]
I know you can be old, curious, involved, caring because I’ve seen some elderly people being just that way. Sadly, it’s not really the norm… but from my perspective (working with the elderly) the best ageing comes with a great attitude, no matter what you’re dealing with.
Give yourself some breaks away from your mom too…. it will help.
August 2, 2011 at 9:38 pm08
I’m a fairly new reader of your blog, and I’ve been sort of catching up, reading older posts. I wanted to mention something to you about one you posted nearly a year ago, but wasn’t sure if you’d see it there, so I hope you will forgive me for commenting on something completely unrelated to this post.
The one I wanted to comment on was “Thermostat Wars.” First, I live in STL, and it’s been over 100 for days, so I am (to my great dismay) familiar with your comments on our summer weather.
Far more importantly, I wanted to mention something that my family has been thrilled to discover: Carhart’s insulated jumpsuits.
My father (nearing eighty) is from the deep south, and likes things warm; my mother is a midwesterner, and likes things cold. When we were little, we’d frequently come downstairs of a winter morning to find our father standing in front of the oven, with the oven on and the door open, trying to warm up. (Granted, he was usually wearing a short-sleeved, lightweight — as in, equivalent to seersucker — jumpsuit, but still.)
Several years ago, my brother was doing environmental cleanup work, which required him to be outdoors for extended periods in all kinds of weather, which is how he discovered the Carhart’s jumpsuits — and that year, our father opened his most useful Christmas present ever. He now has several, and he basically lives in them all winter. (Well, when he’s at home, working on the house or car or yard; he’s a fairly formal gentleman who spends most of the time in a suit and his clerical collar.)
These days, my parents live in a 100+-year-old house with the original (single-pane, uninsulated) windows, so cranking the heat up would really mean heating the outdoors. Instead, they keep the thermostat low and make good use of the fireplaces. He’ll be sitting not two feet from a fire so hot that no one else wants to get within 5 feet — just adding logs is a miserable task — and he’ll be wrapped in his insulated jumpsuit, with the collar flipped up. He stays nice and toasty (even away from the fire), and the rest of us don’t have to roast.
I just wanted to mention it in case it might prove useful to you.
August 2, 2011 at 9:38 pm08
Catherine – that is utterly brilliant. I don’t know if I could convince Dad to wear one, but it’s great to hear the fixes people make to make their lives infinitely more comfortable!
August 2, 2011 at 9:38 pm08
If it helps, the lining is a soft, fuzzy fleece. The outer canvas layer can feel a little stiff at first, but wash and dry a few times and it’s taken care of.
We sometimes tease him about the fact that what he wears indoors is actually designed to be worn by people working outdoors for hours at a stretch in the freezing cold. He even has one or two in camouflage. Once, Mom wanted him to see something she’d found at an antique shop, so he grabbed his gloves, put on his Sherlock-Holmes-style deerslayer hat, and hopped in the car. As they approached the glass storefront, he caught sight of his reflection, turned to Mom, and said, “I look like a hunter, and all I’ve ever hunted is the dinner table!”
August 2, 2011 at 9:38 pm08
Oops — I meant Carhartt’s; sorry ’bout the forgotten second “t” at the end.
Also, if you haven’t already tried them, LL Bean and Lands End sell flannel- and fleece-lined slacks and jeans.
August 2, 2011 at 9:38 pm08
When Maidi, No. 6, says she “could be you,” I think “i was you”……………….and much later wrote a book about it called “A Bittersweet Season.” I discovered your wonderful writing on the New Old Age blog, which I created at the New York Times in 2008, passed along to Paula and follow still like a proud parent. I invite all of you to look at the facebook fan page for “Bittersweet,” published a few months back by Knopf. It is at https://www.facebook.com/JaneGrossAuthor. Would I love you to buy and read it? You bet. But beyond bald self promotion I’m trying to post links to other things of interest to adult children caring for their parents. Among them now is a link to this wonderful father/son combo, who prove it isn’t always daughters (often way too proud of themselves and dismissive of their brother’s contribution, as i was) and moms. All of you are living through the most difficult, and potentially redemptive, thing you will ever do. My mom died in 2003. Would that I had had all of you to “talk” to back then! And these lovely and uplifting posts to read. Please come visit me at the “Bittersweet” page. —- Jane Gross
August 2, 2011 at 9:38 pm08
My mother led such a reclusive life for 9 years after being diagnosed with CLL, a slow-moving blood cancer, at 78. She was terrified of dying and so withdrew from the family or anything that would tire her or tax her in any way.
Even when I went to see her every night after work, she would not turn off her TV from the reruns. She told me Jeopardy kept her mind sharp.
I vowed then that I would do my best to Live until I died, because I didn’t call what she was doing “living”, to my mind it was only existing. Now at 72, I spend a great deal of my time at home, enjoying reading, Internet commenting, a bit of creative writing and poetry, creative healthy cooking for my cancer and naps for my Fibromyalgia fatigue. I find family gatherings taxing and they seem to sap my strength, so I pick and choose what I attend. I’m not afraid of germs as my mother was but I jealously guard my strength so that I can do some of the things I looked forward to when I was raising my three children alone (and sometimes some of theirs). I do nothing out of obligation or because I “should.” I do only what I will enjoy. I feel I’ve earned that and my children agree. They often include me in trips they plan and I go if I feel up to it.
I use a rolling walker with a seat so that I can walk our lovely park-like complex and sit when I must. I just wanted you to know that it is possible to manage illness and do some things you enjoy.
What we all fear is, I think, mental disability. But some of the people who live here, are that kind of disabled. I believe from watching and talking to them they are content with what they can do as well. When I can no longer function at this level I will have Hospice come and care for me daily to spare my children, who still work every day. My mother did that for me and while I felt guilty, I was relieved too, as we didn’t get along that well. It allowed me to be attentive without being worn totally down by the tug of war between us. My daughter said once “this is your room when you need it, Mom.” Oh my, I wouldn’t dream of it. But I love her for being willing.
August 3, 2011 at 9:38 am08
Thank you thank you THANK YOU for being a great example of Living! I am not doomed to repeat the errors of my predecessors… up to a point, one can choose better paths. Great to hear from you! (and from John and others)
August 3, 2011 at 9:38 am08
I’m a great believer, at 78, a stroke survivor since 1995, in “brain fitness” games on line. Lumosity and Happy Neuron are two I’ve tried and can unreservedly recommend. I currently spend 20 minutes a day online, religiously, on games Happy Neuron recommends. I can track my progress. I also write a weekly newspaper column for retirees, heavy on the humor, and five days a week, rain or shine, put out “The Geezers Digest” for the dues-paying members, all in their 70′s, of my 15-year-old senior humor organization, “The Geezer Brigade.” I also post daily on Facebook to keep in touch with far-flung friends and family. Every little bit helps. “Anyone can give up…” a sage once said. Don’t give up your ship without a fight.
August 3, 2011 at 9:38 am08
Hi Chuck Bill and I remember those trips to the ER very well. Have you seen Bill’s post on the Sisyphean nature of caregiving? You can catch it here: http://www.desperatecaregivers.com/caring-for-the-elderly-and-greek-mythology
You and your dad are never far from our minds.
Carol
Inside Aging Parent Care
August 3, 2011 at 9:38 pm08
I have just discovered your blog through the NYT’s New Old Age. Thank you for your thoughtful and beautifully written posts.
As I watch two sets of stubborn, aging parents deteriorate mentally and physically (for better and worse, refusing my offers of help) I find it hard to stay positive. At 56, I am painfully aware that it’s all downhill from here for me, health-wise.
August 5, 2011 at 9:38 pm08
I, too, just discovered your blog through The New Old Age blog, and am very glad I did. I linked you in this post I wrote today http://scientopia.org/blogs/thusspakezuska/2011/08/05/autonomy-is-a-luxury/ on my blog (which mainly focuses on gender and science, but I write occasionally about aging and disability). Thanks for writing your blog.
August 5, 2011 at 9:38 pm08
When his illness (the undifferentiated febrile episode) made him unable to organize and direct his own further treatment, your option was to follow his doc’s advice and just sit until AM. Maybe an aspirin for fever for discomfort. Importantly, the further option was to just sit. Period. Over the next few days, assuming he did not clear his own putative infection, would have seen him become more debilitated, less able to take food and fluids (orally…I hope you were not considering IVs and PEGS) and if the infection led to sepsis a more rapid spiral in. Your chosen job could have been to simply be with him. Offer those fluids, in case he wanted them, give him an aspirin, or other oral or rectal meds for comfort, made available by your GP if it seemed appropriate. And in the end to be there when he died in a few days. Then go on with your own life instead of rubbing your nose in the existential horror of it all. If you choose to do that, c’est la…vie.
August 6, 2011 at 9:38 am08
THank you so much for your writing and your insight. I’ve been working for the past year and a half with seniors in a retirement/soon to be assisted living facility, and have experienced so many ‘symptoms’ similar to yours.
Now I can say that though I find them interesting over all, (many days) they can be maddening individually, and there are even some days I feel so angry I’m almost beside myself. How can you get to be that old and still be that immature?? I kept wondering what was wrong with me to feel that way and now I know…. nothing! I’m just too inundated with old people, and realize I need to take regular breaks. Yup, I have to say, I look at many of the them and think “I don’t want to end up like that!” Also, it will help to work on my own maturity level
Keep up the good writing.
August 9, 2011 at 9:38 am08
Your dedication to your father is admirable. He must have been an incredible father to teach you such love and devotion. One thing I wanted to mention is that there are people out there who can help you, and it’s ok to ask for help. Even if you only need help a few hours a day, there are agencies that can provide high quality Certified Nursing Assistants who can step in and give you some much needed relief. Be sure to shop around, ask for references and take care of yourself.
Good luck.
August 11, 2011 at 9:38 am08
Do not fear the unknown – stay in the present. I truly believe that the beautiful gift you are giving to your father will be rewarded back to you.
If you belong to a church, ask for help. Even if you don’t belong to a church, step inside of one and ask for help – I am sure they will help you – trust me – that is what the Bible teaches. If I lived closer, I would help. All you have to do is to be willing to ask (and the worse answer is “no”, right?!). You might even try an Agency on Aging – they “might” help but not like a church.
I will keep you in my prayers – but know this – you are not unlike many others out there, but you are a very good son and your reward will not be obvious to you now, but it will be – have faith!
August 11, 2011 at 9:38 pm08
Interesting.I have ongoing same experience with my husband-ie anger towards me for having to give up drivers license amongst other things. I can’t count how many times I have responded, “It is not my fault”.( I copied your thoughts under ‘Blame Game’-it mirrors my thoughts and his actions exactly.) A degree of emotional separation seems to have to kick in before it becomes better. And definitely taking personal down time without regret or even explanation, is absolutely necessary.
Also, on refilling prescriptions and driving to and fro.
Our pharmacy-CVS a large chain in NYS-always fill the 4/5 prescriptions he needs automatically, and robocall when ready each month. If refill date ended, THEY contact docs also automatically and directly for a new prescription. This is an excellent service I did not fully appreciate until reading your having to contact docs for prescription refills.
Given the fact of living near a larger city area, we have access to Dial-a-Bus which will come to driveway at least once a month for pick up, and return at a set time. A form for this service must be filled out and mailed, and of course a specific number is called and destination is set a few days prior. A nominal fee under $2. is charged, and client may be accompanied if necessary. A service not used as yet, but having the option is great.
Hopefully we can keep going forward for as long as possible under our own steam in our own home-we are both in our 70′s and thankfully my health is very good-I have always been thoughtful about diet and exercise and it has certainly paid off for me. I take no prescriptions at all.
We are parents of four and have four great in-law children, and have been told not to worry-we will always have a home with them should the need arise.
I hope we don’t need to take advantage of their offers-but who knows?
It is easier to give than receive I think, and helps to explain anger and frustration in someone with ill health having to be physically cared for, especially after being independent most of a lifetime.
Your caretaking responsibilities are very difficult, but for your own well-being, remember it is about YOU too.
August 15, 2011 at 9:38 pm08
It is very affirming to read that someone else has the same fears and issues I do. At 54, I look at my 83 Y.O. Mom and see myself. And yes, it is terrifying.
I haven’t had to move in yet (or move her in with me) but she talks about not moving full time to Cape Cod (she has a 2nd house there) until my brother retires (they live together, he is slightly handicapped). At which point she’ll be 93!!! And she’ll be making a 5 hr drive from NJ to Cape Cod several times a year?!?
All I can say is that when these conversations begin I strap on my sneakers and go running. I figure that to be as fit as possible for as long as possible will serve us both well in the long term.
I wish you well – will continue to read. Thank you.
September 1, 2011 at 9:38 am09
i do wish you good luck with the dating
but here is my picture—>
every morning
my husband drives north 15 mins.
to Help his 92 year old dad who Cannot Hear Well;
i drive east 45 mins
to Help my 89 year old mom who Forgets Most Things.
both are in Assisted Living Facilities of a sort
but that is not enough…
each is lonely and frail and has special needs…
i thank God daily for my over-worked sister
who has her own family with its special needs…
ALF only means
my husband & i can thankfully sleep in our own bed at night…
my husband & i are in our 60s with no children of our own.
there is no Council on Aging,
no church on Sunday,
every day is the same.
plus,
my own husband suffers chronic poor health…
it is difficult to maintain close friendships
with others for support
when you can never plan your own day with certainty
or you are just plain too tired
at the end of the day
to go out…
through all this
there is a matter of money as well as time…
prayer is nice
BUT…
this is our reality…